Who We Are

USAgainstAlzheimer's is a community of engaged and enraged individuals who have been touched by Alzheimer's disease and are united by our frustration at a broken status quo. We are dedicated to mobilizing individuals to demand the urgency, passion and commitment needed by our political, business and civic leaders to achieve the goal of ending Alzheimer's by 2020.

USAgainstAlzheimer's consists of family members, caregivers and researchers who have seen the personal toll of Alzheimer's and understand that the fiscal and social costs of Alzheimer's will devastate our nation. We have seen loved ones in the prime of their lives—many as young as 40 or 50 years old—forget how to eat and care for their personal hygiene. We have seen mothers with young children caring for their own mothers and fathers, with barely a moment to breathe. And, we have seen people suffer over the course of a decade or longer, slowly losing one brain cell and one memory at a time.

Our Theory of Change and a Bold Operating Model

USAgainstAlzheimer's has a bold attitude and agile operating model. We are disrupting the sluggish ‘business as usual' pace of Alzheimer's progress.

Our theory of change is rooted in the strong belief that we, the American people, can create the national will to prevent and treat Alzheimer's by pressuring our political, business and civic leaders to devote the necessary resources to outcomes-oriented research and to reform the drug development systems that currently slow the development and availability of promising treatments. We call this "leadership for the cure." And it works.

In two short years, we and our sister organization USAgainstAlzheimer's have achieved the following:

  • Successfully persuaded the White House and U.S. Department of Health and Human Services to set a time-based goal to prevent and treat Alzheimer's by 2025 and create a national plan to achieve that goal.
  • Secured appointment as one of twelve non-governmental members of the Advisory Council on Alzheimer's Research, Care and Services to advise on improvements to that plan.
  • Leveraged personal and political relationships and a strong network of supporters to obtain commitments and proposals for an additional $169 million to fund Alzheimer's research through the National Institutes of Health and the Department of Defense.
  • Successfully effected the introduction in Congress of legislation specifically aimed at accelerating the development of life-enhancing and lifesaving therapies for Alzheimer's patients.
  • Successfully advocated for the strengthening of Fast Track and Accelerated Review tools for the Food and Drug Administration to use for Alzheimer's therapies.
  • Established an online network of more than 60,000 supporters and the fastest-growing social media presence in the Alzheimer's field.
  • Convened Leaders Engaged on Alzheimer's disease, a coalition of over 50 Alzheimer's-serving organizations including non-profits and for-profit companies. Organized ResearchersAgainstAlzheimer's to serve as the unified voice for the scientific and research community on the value of additional resources for Alzheimer's research.
  • Helped organize a House Foreign Affairs subcommittee hearing exploring the global burden of Alzheimer's disease.